Yesterday Landon got his cast off so we could look at his arm. They are doing ground breaking procedures on his arm in order to make sure it grows properly. (Landon was born with a blood clot in his arm which lead to many surgeries and issues). The doctor is using something called Alloderm to open up the scar tissue and get more extension. We are scheduled to skin graft over it next week. (They'll take skin from his groin or back of his thigh).
Okay, I got that out. I know a few of you gasped at what this poor little guy has to go through. He is such a champion about the whole thing, so happy and okay with it, it really allows me to be positive about it! It is however, a lot to deal with.
After the doctor checked out the alloderm and his arm, Landon got to pick the color or his new cast. He chose a lovely dark blue thank you. My kid has style!
In addition to the arm we are still trying to figure out his speech issues. His first evaluator was obviously mental and said he was fine. I started to just embrace this diagnosis because frankly, I want everything to be okay. In my heart of hearts I knew I had to demand another evaluation. This one we did in home.
The lady was so much nicer and sweeter about the whole thing. She would have me ask Landon to give me things without gesturing towards them (try it, it's hard not to gesture!) I had always thought he understood more than he did! He really didn't have the words for things, he just understands things in context ie: you put on your shoes before you go, but wasn't sure what a shoe was if you asked him to bring it to you.
This was a shock to us but we tried not to freak out. Landon will have speech therapy two times a week and the woman assures us he'll be talking up a storm soon. Landon doesn't have a ton of words but he strings a few together, communicates, and answers yes and no. His latest is he wants to turn "on" and "Oss" the lights.
I know he's smart, I know he's not autistic, but I am worried and want speech therapy to start asap! I feel like we'll see serious improvements after that. I have learned that this following your instincts thing is tough. You want them to be okay but you have to make hard choices and be realistic too.
All this and managing the emotions of a two year old. If he had his way he'd watch Elmo and Bob the Builder all day while eating letter of the day cookies. Then again I'd like to sit around every day and watch Project Runway and Flipping Out eating potato chips, onion dip and drinking Diet Dr. Pepper! I'm just sayin'!
If your kids are dying to have a "sleep over" but are too young, try having a pretend one. Invite the friend over and leave the kids with a baby sitter while you and the parents go out for dinner. Let the kids have their sleeping bags and PJ's and go to sleep. When they wake up in the morning asking where their friend is, say they just left!